The Natural History of the Progression of Atrophy Secondary to Stargardt Disease (ProgStar) Studies

The primary aim of the ProgStar studies is to assess the natural history of the progression of atrophy secondary to Stargardt disease. The ProgStar studies are comprised of retrospective and prospective observational studies. The retrospective study includes clinical examination findings and images collected between 2008 and 2014. The prospective study consists of a 24 month observational period from 2013/2014 for two years, with one visit every six months. The study population will include 250 Stargardt patients in the retrospective study and 250 Stargardt patients in the prospective study recruited currently at 9 clinical centers across the U.S. and Europe. The enrollment of a large population of children and adults with Stargardt disease will assist in evaluating efficacy measures for future clinical trials. The outcomes of interest are measured via imaging (i.e., spectral-domain optical coherence tomography, fundus autofluorescence) and psychophysical testing (i.e., visual acuity, microperimetry).

People

Caitlin Kennedy, PhD MPH,BA

Co-Director, MPH concentration in Social and Behavioral Sciences in Public Health; Associate Director, Center for Qualitative...

Noreen Hynes, MD MPH

Director, Geographic Medicine Center of the Division of Infectious Diseases

Stefan Baral, MD MPH,MBA,MSc

Director, Key Populations Program

Robert Bollinger Jr., MD MPH

Director, Johns Hopkins Center for Clinical Global Health Education (CCGHE); Associate Director, Johns Hopkins Center for Global...

Joanne Katz, ScD MS,BSc

Associate Chair, Director of Academic Programs

Yukari C. Manabe, MD

Associate Director of Global Health Research and Innovation
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August 2020

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